It’s been 150 days now since my bone marrow transplant, and in a word, I am doing well. My blood numbers continue to be in the expected range, and even my hair has started to grow back.
Having said that, some sticky points of recovery from leukemia remain. Most obvious is fatigue, although I’m finding that this can be anticipated, and I can take breaks when I’m doing work, and make it stretch out. Plus, I’m finding that being able to do physical work is so mentally rewarding that helps me push through the discomfort. I make it a point not to go too far, not push myself too much, even though I want to.
Another change is that I feel cold a lot of the time. As a result I dress for warmth, and I have to sleep under a blanket, even here in the early fall. Now, as people who know me can attest, this is a big change. I’ve always been the guy wearing shorts late into the year, and I was always easy to sweat. But that’s changed, and I’m trying to get used to it, but it’s been tough.
I’m still dealing with the PTSD, but I find that being aware of it, acknowledging it, and sharing with my wife and friends, help me to get through it. I can’t say it makes it better, but again I know it’s part of the recovery process.
Now, having said all that, I am still so thankful and blessed to be here.
Yesterday was Thanksgiving, and I took the day to give thanks to God and my family for their help and their blessings. I do that daily, but yesterday was special, especially when I think how easily I might not have gotten the chance.
So, as always, I will keep going, one day at a time. My next milestones and the 6 month waypoint – Christmas day, of all days – and another bone marrow biopsy (the 27th). But I fully expect to still be in remission. I also go fully off the Prograf on Christmas, and as a result I’ll be all on my own against GVHD.
Thanks everyone for your prayers and support! More to come!